Chief Justice Calls for Awareness and Innovation in Rare Disease Treatment

Chief Justice of India DY Chandrachud emphasized the need for societal awareness and support for rare diseases. He highlighted the importance of equitable access to treatments, including innovative gene therapies. Citing socioeconomic disparities, he called for targeted interventions and collaborations between public and private sectors to make advanced medical therapies affordable and accessible nationwide.

Chief Justice of India DY Chandrachud has urged for greater awareness and support for rare diseases, calling it essential for society to be empathetic to affected families. He underscored the critical need for access to advanced treatments.

Speaking at a conference on gene therapy, Chandrachud pointed out that the National Policy of Rare Diseases needs further research to delineate clear definitions and ensure accessibility in India's diverse landscape. He said the country must address socioeconomic barriers affecting healthcare access, especially for marginalized communities.

Referencing India's first home-grown gene therapy for cancer, Chandrachud called it a milestone in affordable treatment. He advocated for stronger industry and government collaboration to foster innovation and make cutting-edge therapies accessible to all.

(With inputs from agencies.)